Fiche du document
- handle: 10670/1.g1aybf
- hal: hal-02515786
- doi: 10.1017/mdh.2019.7
- PUBMED: 30912502
- PUBMEDCENTRAL: PMC6434644
Ce document est lié à :
info:eu-repo/semantics/altIdentifier/doi/10.1017/mdh.2019.7
Ce document est lié à :
info:eu-repo/semantics/altIdentifier/pmid/30912502
info:eu-repo/semantics/OpenAccess
Mots-clés
France Prenatal Diagnosis Medical Termination of Pregnancy Professional regulation Health technology in practice Disability PreventionSujets proches
Prenatal testing Antenatal diagnosis Intrauterine diagnosisCiter ce document
Isabelle Ville, « Prenatal diagnosis in France: between regulation of practices and professional autonomy », HAL-SHS : sociologie, ID : 10.1017/mdh.2019.7
Métriques
Partage / Export
Résumé
Prenatal diagnosis (PND) was introduced in France in the 1970s on the initiative of medical researchers and clinicians. For many years the regulation of practices was self-imposed, decentralised and idiosyncratic. The advent of ‘therapeutic modernity’ in the 1990s gave rise to an ethical, legal and scientific framework designed to homogenise PND at a national level, with the creation of multidisciplinary centres (CPDPN) and the Agence de la biomédecine. This article first recovers the history of PND in France. It then compares the activities of two CPDPNs, using ethnographic fieldwork and by analysing national quantitative data compiled by the Agence. It argues that the official policy of nationally homogenous practices is not born out in practice, at the local level. This lack of homogeneity is most apparent in the number of authorisations for pregnancy termination due to foetal malformation which varies considerably from one centre to another. Rooted in local culture, this variation relates to organisational methods, decision-making processes, and variable levels of tolerance towards the risk of disability. Foetal medicine practitioners, thus, maintain a certain amount of autonomy that is collective rather than individual and that is reflected in the particular ‘identity’ of a given centre.