27 janvier 2022
https://creativecommons.org/licenses/by/4.0/ , info:eu-repo/semantics/openAccess
Kristien Hens, « Prologue: Dynamics and Ethics of Autism », Open Book Publishers, ID : 10670/1.0uzjz4
This is a book about the meanings, experiences and dynamics of autism. My initial interest in autism began ten years ago. As a bioethicist who had written a PhD on pediatric biobanks, I was interested in the ethics of genetic research and genetic diagnostics of autism. These practices raise several questions in traditional biomedical ethics, such as what genetic findings should genetic counsellors convey to their clients, and are genetic ‘risk’ factors for autism a good reason to opt for repr...