“We just need to breathe and live normally”: reconsidering App-Based Peer-Support for parents of adolescents with chronic conditions
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Mots-clés
Chronic Diseases; AdolescentSujets proches
Adolescents Teen-agers Young adults (Teenagers) TeensCiter ce document
Christina Akre et al., « “We just need to breathe and live normally”: reconsidering App-Based Peer-Support for parents of adolescents with chronic conditions », Serveur académique Lausannois, ID : 10670/1.04sbg9
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Purpose: To evaluate and explain a low use of the CO@CH Mobile App, a video-sharing peer-support platform for parents of adolescents with chronic conditions (CC). Methods: Qualitative methods were used to evaluate CO@CH by interviewing 23 parents (19 mothers) of adolescents with CCs: 20 in 5focus groups (FG) and 3 individual interviews (II). Were included parents who had used the CO@CH App (N¼4); parents who initially enrolled to participate but never used it (N¼5); parents who hadrefused up-front to participate (N¼1); parents who had never heardof CO@CH (N¼7); and staff members of patient associations who hadnever heard of CO@CH and who happened to also be parents ofadolescents with CCs (N¼6). All FGs and IIs were audio recorded and transcribed verbatim. All transcripts were opencoded, cross checked, and analysed thematically.