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24 mai 2023
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- handle: 10670/1.2ptgq1
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bartosb, « Launch of a new cross-border Irish rare disease research network », ELSIBI, ID : 10670/1.2ptgq1
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On 13 February 2023, thirty-five partner organisations from across Ireland celebrated the launch of the new All-Ireland Rare Disease Interdisciplinary Research Network (RAIN). The cross-border initiative aims to evaluate the quality of life of people living with rare diseases both in Ireland and internationally and to support global rare disease research by publishing its findings in open access. At the launch event, representatives from participating organisations discussed the role RAIN is ...