Synthesis report COVIDEHPAD: perceptions and attitudes related to confinement, end-of- life and death in nursing homes during the first wave of the Covid-19 epidemic in France. Synthèse COVIDEHPAD : Étude des questions relatives aux confinement, aux fins de vie et à la mort dans les EHPAD, pendant la première vague de l’épidémie de Covid-19 en France. En Fr

Résumé En Fr

The COVID-19 pandemic has changed drastically the way we live. Elderly people living in nursing homes ("EHPAD" in France), their families and the professionals working there were particularly impacted by this crisis. In this context, it seemed essential to keep record of their experiences by collecting their testimonies as soon as possible (in order to not repeat the problem of the lack of data collected during the 2003 heat wave crisis). This is why the French National Platform for End-of-life Research is coordinating since the beginning of April 2020 a qualitative multicenter study to observe and analyze in real time the consequences of the pandemic in these institutions. In six regions of France (Auvergne Rhône-Alpes, Bourgogne Franche-Comté, Grand Est, Hauts de France, Ile-de-France and Bretagne), researchers in human and social sciences conducted interviews with EHPAD professionals and, when possible, with residents and their families. These interviews help to understand the experiences and feelings towards confinement, end of life and death during the first wave of COVID-19 in France. The analysis enlightens the impact of the situation on their perception of end of life and death. The aim of this research is to assess the diversity of situations and to show how professionals and residents tried to cope with this crisis and its consequences.

L'épidémie de Covid-19 a provoqué une situation inédite qui a bouleversé tous les cadres de vie. Les personnes résidant en EHPAD et celles qui y travaillent ont été particulièrement touchées par cette crise sanitaire. Dans ce contexte, il semblait essentiel d'observer et de rassembler dès que possible des témoignages afin de garder une trace des vécus singuliers. C'est pourquoi la Plateforme nationale pour la recherche sur la fin de vie a coordonné à partir d'avril 2020 une étude multicentrique qualitative afin d'observer et d'analyser en temps réel les conséquences de la première vague de l’épidémie dans ces établissements.