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24 mai 2023
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- handle: 10670/1.hd8j6t
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Rare disorders Uncommon diseases Social progress Community illnessCiter ce document
bartosb, « NORD's annual State Report Card reveals progress and challenges for US rare disease community », ELSIBI, ID : 10670/1.hd8j6t
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The National Organization for Rare Disorders has released the latest edition of their annual State Report Card, rating all 50 states and the District of Columbia on how effectively they are meeting the needs of the rare disease community. The new findings reflect the progress made in 2022, while highlighting the next steps that must be taken to continue improving the lives, treatment, and care of people living with rare diseases. Some highlights include: 14 states have not joined agreement...