Development and Validation of a Self-Administered Questionnaire Measuring Essential Knowledge in Patients with Rheumatoid Arthritis
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2022
- handle: 10670/1.w8009m
- hal: hal-03879101
- doi: 10.1007/s00296-022-05090-8
- PUBMED: 35389078
- PUBMEDCENTRAL: PMC9439984
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info:eu-repo/semantics/altIdentifier/doi/10.1007/s00296-022-05090-8
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info:eu-repo/semantics/altIdentifier/pmid/35389078
info:eu-repo/semantics/OpenAccess
Mots-clés
Educational needs Knowledge questionnaire Patient education Patient therapeutic education Rheumatoid arthritis -bio]/Human health and pathology/Rhumatology and musculoskeletal system -bio]/Santé publique et épidémiologieSujets proches
Arthrosis deformans Arthritis deformans Rheumatic gout Adjuvant arthritis Sick--Health education Patients--Education Education of patientsCiter ce document
Malory Rodère et al., « Development and Validation of a Self-Administered Questionnaire Measuring Essential Knowledge in Patients with Rheumatoid Arthritis », HAL-SHS : sciences de l'éducation, ID : 10.1007/s00296-022-05090-8
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Résumé
To develop and validate a questionnaire assessing patient knowledge in rheumatoid arthritis (RA). Knowledge considered essential for patients with RA was identified through a series of Delphi rounds among rheumatologists, health professionals (HPs), patients, and then reformulated to construct the knowledge questionnaire. Cross-sectional multicenter validation was performed in 12 rheumatology departments to assess internal validity (Kuder\textendash Richardson coefficient), external validity, acceptability, reproducibility (Lin's concordance correlation coefficient) and sensitivity to change (difference in total score before and after patient education sessions). Associations between patient variables and knowledge levels were evaluated. RAKE (RA Knowledge questionnairE) is a self-administered 45-item questionnaire scored 0\textendash 100, with a 32-item short-form survey assessing knowledge of disease, comorbidity, pharmacological treatments, non-pharmacological treatments, self-care and adaptative skills. Of 130 patients included in the validation study, 108 were women. Acceptability was good with\,