Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia
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30 août 2024
- ISIDORE Id: 10670/1.0ba218...
- hal: hal-04979169
- doi: 10.1371/journal.pone.0307874
- PUBMED: 39213306
- PUBMEDCENTRAL: PMC11364253
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info:eu-repo/semantics/altIdentifier/doi/10.1371/journal.pone.0307874
Ce document est lié à :
info:eu-repo/semantics/altIdentifier/pmid/39213306
http://creativecommons.org/licenses/by/ , info:eu-repo/semantics/OpenAccess
Mots-clés
MESH: Humans MESH: Malaysia MESH: Socialization MESH: Child, Preschool MESH: Adolescent MESH: Feeding Behavior MESH: Adult MESH: Family MESH: Prader-Willi Syndrome MESH: Female MESH: Male MESH: Child MESH: CaregiversSujets proches
Food habits Foraging behavior Foods Feeding behavior Family Family structure Families--Social aspects Families--Social conditions Family life Structure, Family Family relationships Relationships, FamilyCiter ce document
Puspa Melati Wan et al., « Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia », HAL SHS (Sciences de l’Homme et de la Société), ID : 10.1371/journal.pone.0307874
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Résumé
This study aims to explore the food management strategies among caregivers/family members of children with Prader–Willi Syndrome (PWS) using the lens of ‘familialisation’ of a health problem and the sociology of food socialization. Food intake among individuals with PWS is a main concern for parents, caregivers, and medical practitioners as it affects their physical, mental, and social well-being throughout their lives. Earlier studies on PWS and food intake centered around dietary management, dietary intake and growth, nutritional treatment and pharmacological approaches, nutritional phases, and weight gain. However, little has been done to understand the challenges of managing children with PWS from the sociological lens of food management strategies and socialization among families in Malaysia. This study is based on an investigation involving eight children with PWS and 46 family members and caregivers through lab observations and reflexive interviews. Ten food management strategies were identified that were adopted by the caregivers and families, which were influenced by cultural factors, family norms, and formal and informal support systems. The findings will influence future behavioral interventions to ensure the empowerment and well-being of individuals with PWS and their families.
